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| About PHI | EDUCATION | ADVOCACY | RESEARCH | NETWORKING | ||
Learn about The Research Fund of PHI
and opportunities to
participate in research ...
PHI’s Fifth Research Grant: Call for Proposals
About The Research Fund
Resolution / What research will PHI support?
How will funding decisions be made?
How can contributions be made?
Prior Awards
THE FOURTH AWARD (2007)
PHI Grant Awarded to team at University of Arkansas for Medical Sciences (UAMS) for Pilot Study to Identify PPS Biomarker. The researchers propose to determine whether there is a unique signature, or disease biomarker, in the immune system of individuals with post-polio syndrome (PPS) that would enable a more definitive diagnosis of PPS.
PRESS RELEASE, December 19, 2006 (pdf)
THE THIRD AWARD (2005)
The final report, Timing of Noninvasive Ventilation for Patients with Amyotrophic Lateral Sclerosis, was completed October 2006 by the team of researchers from Johns Hopkins University in Baltimore, Maryland, who conducted a retrospective cohort study of patients with ALS to determine survival time with early use of noninvasive ventilation.
PRESS RELEASE, December 2004:
PHI Grant Awarded to Johns Hopkins Team to Study Early Use of Noninvasive Ventilation in patients with amyotrophic lateral sclerosis (ALS) and to relate their findings to other neuromuscular diseases including polio and its late effects.
THE SECOND AWARD (2003)
The final report, Women with Polio: Menopause, Late Effects, Life Satisfaction and Emotional Distress, was completed May 14, 2004 by the team of researchers from the University of Michigan in Ann Arbor, Michigan, who conducted a nationwide study of the effects of aging on the lives of polio survivors comparing the problems of men and women.
PRESS RELEASE, August 26, 2004:
New Study Reports Post-Polio Women Experience Menopause Differently than Nondisabled Peers
PRESS RELEASE, November 2002
$25,000 Grant Awarded to Study Effects of Aging on Polio Survivors
THE FIRST AWARD (2001)
The final report, Ventilator Users' Perspectives on the Important Elements of Health-Related Quality of Life, presents the perceptions of the health-related quality of life of 26 individuals living in the community (Toronto and Edmonton, Canada) with long-term use of home mechanical ventilation due to neuromuscular disability or traumatic injury.
Opportunities to Participate in Research
Participants Wanted: Live in the DC or Johnstown, Pennsylvania area?
Check out this research opportunity funded by the Department of Defense.
Suggestions for research that have been sent to PHI include ...
- A study to find out how many polio survivors are chemically sensitive.
- A study of the number of polio survivors with problems related to their hearts.
- Prevalence of aging polio survivors with multiple disabilities.
- Prevalence of respiratory and speech/language deficits in polio survivors.
- The overall effect of polio on the immune system; and on sex and family life.
- A study to determine if large doses of Vitamin C will help a post-polio person.
Send your comments to info@post-polio.org.
Additional contributions are needed to increase the corpus of The Research Fund so larger grants can be awarded.
"Contributing to the Fund is an excellent way to honor loved ones," says Joan Headley, Executive Director of PHI & IVUN.
Tax-deductible donations can be sent to:
Post-Polio Health International (PHI)
4207 Lindell Boulevard, #110, Saint Louis, Missouri 63108-2930 USA
Checks should be made payable to "Post-Polio Health International" (US dollars only).
PHI also accepts VISA, MasterCard and Discover and accepts online donations.
To offer "Gifts-in-Kind" sponsorships, or to ask about the needs of PHI, contact
Joan L. Headley, Executive Director, at 314-534-0475 or director@post-polio.org.
PHI's Federal I.D. No. 34-0961952