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Can You Help?

Send questions and receive answers about equipment, resources and non-medical concerns. Submit your request or comments to info@post-polio.org.

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"Networking links people who share common needs or common goals. Networking is a support system. It is a method of self-organizing. It is the structure of a social movement. Most of all, it is a method by which people get things done."
GINI LAURIE, PHI Founder and early leader in the independent living movement

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INDEX OF REQUESTS:

Advice for filing for private disability

Renovating home and need website that offers accessible designs

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Surveys

An ICD – 10 Classification of Post-Polio Syndrome

Survey on Use of Medical Equipment

Grant to help people with disabilities get information about specific sexual concerns

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Travel

My TSA Security Screening Nightmare

Find a hotel from a list of over 37,000 wheelchair-accessible hotels from around the world

Website that provides fully accessible accommodations for travelers with disabilities

Where do I find information about polio and polio shots?

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Equipment and Equipment-Related

An answer for person searching for arm supports

Shoes, mismatched, etc.

Braces available from daughter in Atlanta

Problems with his skin on his leg under his brace

Need of a Bruno Lift for my minivan

Solution for the problem of a raised toilet seat that continually loosens

Looking for a backpack/knapsack that I can use while walking with bilateral canes/crutches

Seeking user recommendations from users of accessible minivan conversions by Freedom Motors of Battle Creek, Michigan

Great-running, fully-equipped, handicapped-accessible 1980 Dodge van for $2500

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Various Topics

Is there any research showing benefits of Vitamin C related to post-polio syndrome?

Wondering about pain in arm; pursued cause and lessons learned

Not able to walk any distance without a cane due to the fatigue in my left leg and that leg is much shorter now. I wonder if there is a solution.

Wonder about the effects of exercise

Wondering if brain lesions could be from polio

Interested in hearing from anyone who has had bulbar polio with paralysis of facial muscles AND who also has obstructive sleep apnea

Left hand is noticeably white and my right hand on my "polio" side is noticeably pink

Would like to see a study of post-polio and development of idiopathic pulmonary fibrosis; wonder if there are other polio survivors out there who have other lung problems that have been misdiagnosed

Have exercised regularly; question is how do you know when you are doing too much or not enough exercising?

Has anyone had experience with chiropractors?

Wondering if anyone with post-polio has tried acupuncture for fatigue and pain

The Polio Oral History Project

Calling all Polio survivors and their stories and their art for new museum opening in Agassiz

Looking for artist and polio survivor Ann Adams

From the Philippines and trying to get more information about polio and its late effects I am 31 years old and hope that I still have time to start a family.

Interferon treatments caused weight loss and fatigue; with having PPS will I be able to recover some of my weight and muscles?

Hypertension and getting it controlled with medications

Weak neck muscles, strain of holding my head up causes me to lose my concentration

Fingernail care for hand drawn up into a fist

Rotary International’s Polio Plus campaign; any of this money available to polio survivors?

Do not experience fatigue but am experiencing weakness in one leg. I have plenty of energy. Is this typical?

Want to know how/where/to whom to donate a body and/or to arrange for any specimens that may be of use in ongoing research on post-polio syndrome

Children of Polio Survivors

Daughter searching for a Cynthia Hull (name of person in 1963)

Have any other post-polio survivors also experienced encephalitis? Does anyone else have family members in denial and calling you a hypochondriac?

My calf muscle in my one leg is smaller than the other. Is there a solution so that my legs will both look the same?

Interested in contacting post-polio survivors who underwent spinal fusions and are now in need of redoing part of the fusion

Would like to have information about good centres in Asian countries where they could do a limb-lengthening operation for a polio adult 

Looking for information on interactions between chemotherapy neurotoxins (such as taxol) and post-polio syndrome

Breathing is a major problem; have emphysema. Sleeping is almost impossible. Is there anything that can be done for me?

Job Offers & Needs

Had bulbar polio in 1957 and I am having lots of trouble with my throat muscles and it is very hard to swallow

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