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Post-Polio Health (ISSN 1066-5331)

Vol. 8, No. 2, Spring 1992

 

National Polio Research Coalition Springs into Action

We are proud to let you know that the 1991 activities to encourage favorable Congressional appropriation decisions by the Polio Society and the postpolio community at-large resulted in a Program
Announcement
issued by the National Institute of Neurological Disorders and Stroke (NINDS) in early February. Although the Program Announcement does not set aside specific research dollars for post-polio, it is a statement of the Institute's intent
to seek and fund projects on post-polio which receive a good score from scientific review committees.

In late March, the newly formed National Polio Research Coalition sent a letter to researchers, postpolio clinics, health professionals, and support groups listed in the IPN directory to let them know
about the Program Announcement. We are in the process of sending copies of the Program Announcement to as many interested researchers as we can find. Our goal is to make sure that any and all interested researchers are aware of the interest
by NINDS to fund post-polio research projects, and to encourage them to submit applications. This is another way to convince NINDS that the interest in post-polio is ongoing and growing.

On April 30, Lauro HaIstead, M.D. will testify before the House Appropriations Committee to request that the National Institutes on Health (NIH), specifically the National Institute of Neurological
Disorders and Stroke (NINDS) and the National Center for Medical Rehabilitation Research (NCMRR) issues a REQUEST FOR APPLICATIONS (RFA) in the area of post-polio for five million dollars. The purpose of the RFA will be to investigate (a) the causes(s) of post-polio syndrome and (2) the most effective treatments.

Now is the time to write a letter to your Congress – man in support of Dr. Halstead's testimony and request for an RFA from the NINDS and NCMRR for five million dollars. Include a paragraph on how post-polio symptoms have affected the way you live your life, and how more research could possibly make a difference. Send letters to your Congressman at the House of Representatives (The Honorable Xxxxxx Xxxxxxxxxxxx, U.S. House of Representatives,
Washington, DC 205 15). Please write even if you receive this after April 30th.

If your Congressman is not a member of the Appropriations Committee (see list below), ask your representative to relay your concerns to members of the Appropriations Committee.
If you have any personal connections to any Congressman, please call Jessica Scheer (301-897-8180) or Joan Headley (314-534-0475) as soon as possible.

Also, please follow your letters with a phone call to your Congressman's office in Washington. All phone calls can be made through the Capitol
switchboard (202-224-3121). You will probably speak with a staff person; make your statement
brief and personal.

Dr. Halstead will hear from the Senate Appropriations Committee about a date for his testimony in
late May. If you are interested in writing to your Senator at that point, please send your name and
address to the National Coalition for Polio Research do IPN. We will send you information about the testimony date and the request.

Your voice can make a difference! You helped in 1991. Please join us in our 1992 campaign.


Key Congressional Committees for Post-Polio Issues
U.S. House of Representatives

Appropriations Committee; Subcommittee for Departments of Labor, HHS and Education

William Natcher (D-KY), Chair
Neal Smith (D-IA)
David Obey (D-WI) staff: Anne Georges
Edward Roybal (D-CA) staff: Jorge Lambrinos
Louis Stokes (D-OH) staff: Anita Estell
Joseph Early (D-MA) staff: Rick Lane
Steny Hoyer (D-MD) staff: Johnnie R. Hemphill, Jr.
Robert J. Mrazck (D-NY) staff: Steve Goose

Carl Pursell (R-MI) Ranking Minority Member, staff: (vacant)
John Porter (R-IL) staff: Mike Myers
Bill Young (R-FL) staff: Douglas Gregory
Vin Weber (R-WI) staff: Jane Williams

Subcommittee Staff
Mike Stephens, Staff Director
2358 Rayburn House Office Building
Phone: 202-225-3508, 202-224-7283

Phone Calls: All phone calls can be made through the Capitol Switchboard 202-224-3121. Ask for the office you are calling, i.e., the Member's office or the committee or subcommittee office. With the exception of the chair and ranking minority of each subcommittee, staff will be in the office of their member.

Letters: Room numbers are not necessary to write a Member of Congress; all mail goes through the Post Office at the Capitol.

Letters to Members of The House of Representatives should be addressed:
The Honorable (name of Member)
United States House of Representatives
Washington, DC 20515

 

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